[KI-LC] ONC Workshop - 10 mins to present Kantara's views + written comments.

Colin Wallis Kantara colin at kantarainitiative.org
Thu Aug 13 09:41:15 UTC 2020

Great, thanks Barry and Tom for those responses.
So it was HIAWG and not FIRE preparing those comments.. my apologies to the
HIAWG folks..
There's some great material there to work with. Thank you!

On Thu, Aug 13, 2020 at 12:35 AM Tom Jones <thomasclinganjones at gmail.com>

> i should add that this was to meet a dead-line of 8/31 for comments on
> patient matching and identity, so it aligns with some, but not all of what
> you listed. As a side we are also pushing to expand the Kantara framework
> to actually report results of assurance testing on apps that meet ONC
> requirements, but that has a somewhat longer lead time and is not fully
> fleshed out.
> Peace ..tom
> On Wed, Aug 12, 2020 at 4:17 PM Tom Jones <thomasclinganjones at gmail.com>
> wrote:
>> here is the current draft - it is awaiting feedback from Dr. Tom & Jim.
>> Peace ..tom
>> On Wed, Aug 12, 2020 at 3:33 PM Colin Wallis Kantara <
>> colin at kantarainitiative.org> wrote:
>>> Folks
>>> 'Circling the wagons' for those I think would be interested in working
>>> together on this but please distribute further in the Kantara community WGs
>>> to catch anyone I may have inadvertently missed.
>>> Carmen Smiley (many of you know and thanks again for the intro a few
>>> months back Catherine) has asked me to present at an ONC workshop on August
>>> 31st  that will inform ONC's response to Congress on September 4th.
>>> Those of you on the HIAWG call last week heard this from Carmen herself.
>>> The session and report (with our written comments) is dedicated to the
>>> creation/promulgation of a unique patient identity in the US, so any
>>> recommendations that we have for Congress would be appreciated.
>>> Presentation is required to cover:
>>>    - The Kantara Trust Framework
>>>    - Conformance Testing
>>>    - Importance of standards
>>>    - Anything else we feel is relevant ..
>>> (so you can sense what they want from us ).
>>> Comments:
>>> Did I hear somewhere that FIRE was holding the pen on these? Or is that
>>> an individual endeavour?
>>> We do need someone to be collating Kantara's collected comments into a
>>> submission. I don't have a sense of the length and detail of that but for
>>> Congress folks it might necessarily be short and simple,
>>> The ask:
>>> I am asking for your ideas as to what you would like to see in the
>>> presentation, (provided they sit within the brief given). Input by Monday
>>> August 24th please.
>>> I am asking for your written comments on the subject, and for someone to
>>> act as editor to fold into a cohesive story, as many of those comments as
>>> possible. The comments deadline is September 4th so I think we aim for
>>> August 24th to start collating so we see a draft around August 31.
>>> This topic may find its way onto WG agendas for wider discussion if WG
>>> Chairs can give leeway for it inside their already busy schedules.
>>> What say ye?
>>> Thanking you in advance.
>>> Kind regards
>>> Colin
>>> ......................
>>> Background:
>>> Carmen is leading a public working session on Patient Identity and
>>> Patient Matching on August 31, 2020 from 9:30am-4:30pm ET focusing
>>> primarily on privacy & security, identity & matching standards, research
>>> and analysis, with some advocacy and innovation. She wants to hear
>>> Kantara's perspective. For more information and access to the
>>> Appropriations Agreement and I think I saw a short reference to it on page
>>> 123:
>>> https://protect2.fireeye.com/url?k=a7d6a93c-fb82b040-a7d69803-0cc47adc5fa2-69f58c1127591ba6&u=https://www.healthit.gov/topic/patient-identity-and-patient-record-matching
>>> <https://www.google.com/url?q=https://protect2.fireeye.com/url?k%3Da7d6a93c-fb82b040-a7d69803-0cc47adc5fa2-69f58c1127591ba6%26u%3Dhttps://www.healthit.gov/topic/patient-identity-and-patient-record-matching&sa=D&source=calendar&ust=1597597458454000&usg=AOvVaw0aC7_i21d7FfGZZBGeqdVe>
>>> <
>>> https://protect2.fireeye.com/url?k=839bcec9-dfcfd7b5-839bfff6-0cc47adc5fa2-15e49cfd1684997b&u=https://www.healthit.gov/topic/patient-identity-and-patient-record-matching
>>> <https://www.google.com/url?q=https://protect2.fireeye.com/url?k%3D839bcec9-dfcfd7b5-839bfff6-0cc47adc5fa2-15e49cfd1684997b%26u%3Dhttps://www.healthit.gov/topic/patient-identity-and-patient-record-matching&sa=D&source=calendar&ust=1597597458454000&usg=AOvVaw2jUBwcXnu0k9JenFuTXdFP>>
>>> ONC's first public working session webinar that informed the report
>>> (Catherine was presenting):
>>> https://protect2.fireeye.com/url?k=b638ae07-ea6cb77b-b6389f38-0cc47adc5fa2-5ab5b2eb3c423d57&u=https://www.healthit.gov/news/events/onc-patient-identity-and-matching-working-session
>>> <https://www.google.com/url?q=https://protect2.fireeye.com/url?k%3Db638ae07-ea6cb77b-b6389f38-0cc47adc5fa2-5ab5b2eb3c423d57%26u%3Dhttps://www.healthit.gov/news/events/onc-patient-identity-and-matching-working-session&sa=D&source=calendar&ust=1597597458454000&usg=AOvVaw1u8TuGnfIOlmPVuB8BAZd6>
>>> <
>>> https://protect2.fireeye.com/url?k=0951fb14-5505e268-0951ca2b-0cc47adc5fa2-3ca311c3131552c0&u=https://www.healthit.gov/news/events/onc-patient-identity-and-matching-working-session
>>> <https://www.google.com/url?q=https://protect2.fireeye.com/url?k%3D0951fb14-5505e268-0951ca2b-0cc47adc5fa2-3ca311c3131552c0%26u%3Dhttps://www.healthit.gov/news/events/onc-patient-identity-and-matching-working-session&sa=D&source=calendar&ust=1597597458454000&usg=AOvVaw28SYwpGwXSP7eQ46GYu4B3>>
>>> In addition, she asks that Kantara please submit comments with
>>> recommendations on identity and matching in the context of the first US
>>> national unique patient identifier. A bill just passed the House to lift
>>> the prohibition on spending HHS funds on the promulgation of a UPI. While
>>> awaiting the Senate’s response, at least there's an inkling that we are
>>> inching closer and closer.
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